AHCA Jeopardizes Rachel’s Pink House

All of us know someone who works this system to receive government supports. Yes, we all know people on “welfare” who abuse the system. The battle cry is often “yes, cut funding because most of the people receiving the services […]

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Shakespeare and that Inclusion Thing

Last weekend, Rachel was Strato in her high school’s production of Julius Caesar. If I counted correctly, she had seven lines.  She was scarcely seen until the end when she appeared in a big way in one of the final […]

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Stop Whining and Start Advocating

I get it. You are angry, disillusioned and disappointed with recent events in Washington DC that could have a devastating impact on people with disabilities. So am I.  People need to vent. I get it. Now, it is time for […]

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Will Rachel be a Teacher?

Happy National Teacher Appreciation Week, at our school anyhow.  I thought this would be an appropriate time to do a little catch-up on Rachel’s year. It was about a year ago this time that we found out she would be […]

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Ordinary Advocates Matter & Inclusion Works

I’m a little late with my blog but a couple of weeks ago we did our annual NDSS Buddy Walk® on Washington.  Over 350 people, including 95 self-advocates, from across our nation, most at their own personal expense, descended on […]

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How You Can Celebrate World Down Syndrome Day 2017 #wdsd17

Tuesday is World Down Syndrome Day #wdsd17,  but I’m posting this today because Rachel wants you to be ready to celebrate with us tomorrow.   WDSD is recognized every year on March 21 (3-21) because Down syndrome is created when a […]

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18 Years Ago – A College Road Trip?

This time 18 years ago, Jonathan was about halfway through his radiation and chemo treatments for colorectal cancer.  I was pregnant with Rachel who was due to be born at the end of June.  We had a prenatal diagnosis so […]

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#WDSD17 Champion

World Down Syndrome Day  is recognized every year on March 21 or 3-21 because Down syndrome is created when a person has three copies of the 21st chromosome.  People and organizations around the globe will celebrate the lives of individuals […]

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Reading, Inclusion and Big Picture Thinking

During last week’s Parent-Teacher Conference, Rachel’s English teacher mentioned that following their next reading project they would be discussing women’s rights.  Rachel has already read the piece. We pre-read and then watch a video or movie if available. As we […]

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A Forrest Gumpesque Life: The Difference 18 Years Makes

I’ve been sending an email to a certain circle of friends every February 5 for 18 years now.  Thought I’d include all of you this year. Dear Friends of Rachel, Been thinking a lot this week about the difference 18 […]

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