TN & AR – Are You ABLE?

As I write this, we have hit 39 Senate Co-Sponsors on the ABLE Act of 2013.  If you have been living under a rock for the past few years, you may not know that the ABLE act is Achieving a […]

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Are You Ready…

For some football? I am!  Here you all thought this would be some deep and philosophical debate about “curing” Down syndrome or the relationship between “maternal age and births of babies with Down syndrome.” A girl has to have a […]

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The R-Word Funny?

Reprinted from March 2013 Really, it’s not funny. It’s not about being politically correct or too sensitive either.  It’s about respect and dignity. If asked, with a huge smile Rachel will tell you the R-Word is Rachel and she will spell […]

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DS Parents – Guilty of Feeling

I started to say I learned something the past two days.  However, I realized I was simply reminded of something. A lot of parents, especially moms of children with Down syndrome and other disabilities, have a lot of guilt and […]

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Taking Away the Down Syndrome

You know it didn’t just begin, this quest for curing Down syndrome. I am no expert but based on what I’ve seen in my 14 years of living with Rachel, nine months of expecting her and all those years studying […]

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Not Just Like You?

Yesterday it was a great honor to spend our lunch time with some good friends. The occasion was another screening of the Just Like You – Down Syndrome video. Our sweet friend Kim had been wanting to host a viewing […]

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I’ll Take Her With Down Syndrome, Please

Last week I was at the National Down Syndrome Congress Convention for the first time in a few years.  It was good to be there and visit with many good friends while making some new ones.  A week ago today […]

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Variety Makes Stars!

This past weekend Rachel had the opportunity to participate in program full of stars!  It was unique because it wasn’t the usual stars.  It was the Variety Children’s Charities of Kansas City first Inclusive Theater Camp. I would call it […]

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The Blessing of my Grandmother Molene

My grandmother would have been 92 today. She went to be with Jesus when Rachel was three. I can hear her singing with Him just like I could hear her singing “What a Friend We Have in Jesus” as I […]

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Cucumber Yummers!

I don’t even know if Yummer is a word. I just like the way it sounds. I love cucumbers. I always have. My mom always joke that there was a pan full for me and a couple for everyone else […]

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