Rachel’s Journey to Advocate

A few weeks back, Rachel and I had the honor of leading a session at the National Down Syndrome Congress (NDSC) Virtual Advocacy Training Boot Camp. We had the task of sharing with participants how you effectively engage with legislators […]

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Guest Blog: Rachel’s ABLE to Save Message

It’s National #ABLEtoSave month!  Rachel joined Matt Syverson, Financial Planner and Dad to a daughter with Down syndrome,  Tom Treacy, Kansas State Treasurer’s Office, and me in sharing about ABLE accounts at the Down Syndrome Guild of Greater Kansas City […]

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A Year Later – Rachel’s Pink House

One year ago today, Rachel opened the first Kansas ABLE Savings Account. It was a BIG deal to us! Having advocated for the passage of ABLE for eight years and then three years after the federal law passed, Rachel had […]

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Ringing Out This Year with TheSassySouthernGal’s Top Blogs

I know you are just waiting for TheSassySouthernGal’s top blogs for 2017!  Your comments, shares and views tell me a lot.  Let me know if you pick up on your favorite themes from these Top Ten Blogs from 2017?  Oh […]

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Jonathan & Jawanda: A Modern Day Comedy/Tragedy Chapter 28 Sabbatical Online Edition

  Jonathan and Jawanda A Modern-Day Comedy/Tragedy – The Sabbatical Year Online Chapter 28 Merry Christmas, Happy Holidays and Happiest New Year! January started with Rachel opening the first Kansas ABLE Savings Account on January 26. It wasn’t just a […]

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Finally ABLE to Save for Rachel’s Pink House

Four score and seven years ago we started working on passing the ABLE Act.  In reality it only took eight years, but there were days when it seemed much longer!  A few years ago just before the ABLE Act passed, […]

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Awe Struck/Never Forget 9-11

Like many of you I remember exactly what I was doing when I heard that the World Trade Center had been hit by planes. I was not at home and everyone around me was chattering about it but no one […]

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Speaking of Congressional Champions

Rachel and I had the honor and privilege of joining our Senator Jerry Moran (R-KS) for a lunch meeting today. We love Senator Moran for so many reasons. One of his district office staffers, Michele, coordinated today’s logistics and met […]

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On a Day Like Today

On a day like today most 15-year-old girls get up and go to school. Rachel, she got up early and rode with mom to Topeka. Today would be the next to last step in the process of the passage of […]

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Ordinary and Whimsical

Last week was the National Down Syndrome Society’s (NDSS) Buddy Walk on Washington: the time we set aside to go an tell our stories on Capitol Hill. We also celebrate and give awards. This year I had the tremendous honor […]

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