Yesterday was World Cancer Day. My husband Jonathan is almost 23 years cancer free. He had a colorectal tumor removed 23 years ago yesterday. We are blessed. Twenty-three years ago today, our world changed forever when we learned our unborn […]
A few weeks back I wrote a blog about my real feelings and thoughts about adult life. Almost 1,000 hits in two days. That’s a big number for me. I also had a plethora of Facebook comments, and many of […]
This blog has been hard for me to write. Almost didn’t write it. Emotional. But here we go. Rachel just got a job at a local grocery store chain. She is a courtesy clerk which is just a fancy name […]
World Down Syndrome Day (#WDSD21) is Sunday, March 21. It is a day recognized by the UN, countries and organizations around the world where we celebrate the lives of individuals with Down syndrome. We also try to raise awareness and […]
A few years ago I started an online advocacy group for individuals with Down syndrome and their family members, #321Advocate. My goal was simple: to better equip people to be effective grassroots advocates. Many people asked me how to advocate, […]
A few weeks back, Rachel and I had the honor of leading a session at the National Down Syndrome Congress (NDSC) Virtual Advocacy Training Boot Camp. We had the task of sharing with participants how you effectively engage with legislators […]
The coronavirus has impacted each of us in different ways. A challenge to one person does not impact another person in the same way. Likewise, we all cope differently. That does not mean that my way is better than yours. […]
What’s Cookin’ is just a cute way to say, “How are you doing during the Covid quarantine?” We are fortunate that my husband can work from home. I have been engaged in a bit of advocacy and coordinating a few […]
Haven’t shared any blogs during Covid. Maybe I’ll do one next week on Rachel’s transition home from college. Today’s topic is Rachel’s Faith. Rachel started presenting a Power Point presentation about her life and dreams to her IEP team when […]
Rachel just returned for her 3rd semester in the Missouri State Bear POWER program. She truly loves being a college girl. While she was home, we were cleaning out her notebooks. Actually, it was mostly me cleaning out her notebooks. […]