You Are Special

June 8, 2011

 

Party_girl2

As the parent of a child with an intellectual disability, a child with special needs, some of of my least favorite words are, “God chooses special parents for special children.  You are so special.”  Gag!  In fact, while I was pregnant a friend said those very words to me and I responded, “Then you go be special because it doesn’t feel very good right now.”  Fortunately, she is a dear friend who loves me a lot and looks past my sassy mouth.  I think God creates all children special and He intends for all parents to be special. If we are special because we have a child with special needs, does that mean those other children are not special?  I know people usually mean no harm with such statements and I have learned to smile in response.  Really that is not the point of today’s blog. I want to talk about birthdays and birthday traditions. 

Rachel’s 12th birthday is Monday. If you live within 500 miles of us, you’ve been hearing about it for months. She celebrates a birthday like no one else.  Being an only child just adds to that center of the universe attitude. As we approached her first birthday we decided we wanted to create a tradition that would hold meaning for her as she grew up.  I don’t know where we came up with the idea because I know it wasn’t original on our part, but we decided that each birthday she would receive a special book from her Daddy and me. We also decided that each year each of us would write a letter to Rachel inside the cover.  We both have input on the chosen book. Some years it is a classic while others are our own childhood favorites and others have been popular books from that particular year. For example, two years ago we gave her “Pinkalicious”. She is perfectly pink so it was perfect. I have fun going back and reading the entries. It’s usually about this time of year when read through, and Rachel likes to read the letters now too.  The ones in cursive she needs some help with but otherwise she does very well. She grins and says “oh sweet” a lot as she reads.

 

For her first birthday, I knew exactly the book I wanted her to have and Jonathan agreed.  Though I really don’t like the “special” tag, one of my favorite books is “You Are Special” by Max Lucado. I find it ironic that one my favorites books would be tagged with the word “special” long before I became “special” by having a child with “special” needs.  Congratulations if you followed that sentence!   I contend it is one more way God shows He has a great sense of humor.  I’ve been giving this book to friends since long before Rachel.  It communicates beautifully the concept that I am trying to capture:  we are all special because God created us. It doesn’t matter if you have an intellectual disability, if you are a great athlete, if you have genius IQ, if you have a bad attitude or if you have star power, God created you and He created you perfectly.  I’ve given this book to graduates, babies, adult friends, children, and relatives. It is just a beautiful book and should be part of your library. Today, I want to share with you what I wrote to Rachel on her first birthday:

 

“Dearest Rachel. Happy 1st Birthday my little angel girl!  This has been an exciting year. You and I have learned and have done so many things. You have mastered many skills – too many to name here. We spend lots of time together – playing, singing, reading, dancing and just going. I love to kiss you and you love trying to pull my face off!  Most importantly, you have brought a deep love and joy to mommy and daddy’s lives and to many other people. People are drawn to you. Maybe it is because you have always been a sweet baby and people love to babysit you and have you in the church nursery.  Maybe it’s because of those piercing blue eyes that lock into people.  Nothing brightens my day like your big wide smile or watching your face light up when you see your daddy. Before you were born I told you that you weren’t what I wasn’t expecting. I also told you that I understood we probably weren’t what you were expecting either!  But you know you are much better than my wildest expectations.  You are the most angelic, sweet and precious thing that I could ever imagine.  I tell you quite often “you are better than I ever imagined, and you are!  I love you, my little Rachel. Happy First Birthday. Love you always and forever Mommy. ”  

You_are_special

Posted from Olathe, KS

Deborah Jones VanLeuven (Facebook) responded:
Deborah Jones VanLeuven
what a wonderful story! I wish I had done something like that for Callie! I appreciate the “special” thing too. I always responded that I was no better than anyone else and wouldn’t you do whatever needed to be done as a parent? I agree all children are special and I am always impressed with your eloquence. much love to your family! Callie talkes about her birthday ALL Year long! I asked yesterday if we could go one day with out talking about birthdays!!!
Doreen Coston Harris (Facebook) responded:
Doreen Coston Harris
I love Love LOVE Birthdays!!! Rachel’s birthdays are the best. Can’t believe our baby girl is a pre-TEEN!!!! Love you all <3
Kimberly responded:
As always, love reading your entries! Happy Birthday sweet Rachel! Love you my friend!
Jawanda Mast responded:
Jawanda Mast
Thanks for reading and all the nice thoughts. You guys are special to us! Doreen, I do not understand why E cannot FedEx a cake to me? Really.
Human Capital Solutions responded:
As a person with a visible disability, I totally get where you are coming from with regards to the term ‘special’. I have even gotten that as has my mother and late father. I commend you for addressing this injustice in such a public way. My company, Human Capital Solutions has a vision to improve the standard of living of all persons with disabilities internationally. One of those ways will be through education, similar to what you have begun here on your site.
Jawanda Mast responded:
Jawanda Mast
Thanks for reading. It takes a village to raise a child and it takes all of us advocating for change to improve the standard of living for people with all kinds of disabilities.
“Justice will not be served until those who are unaffected are as outraged as those who are.” — Benjamin Franklin.
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