Rachel is getting her tonsils out tomorrow. They called Monday to go over the intake list. About five minutes into the interview, the nurse says “Did you say she has Down syndrome or she has been tested for it?” This […]
At the end of the school year, I call it IEP Season. I notice an upsurge in social media requests and pleas for information. I also seem to get more blog readers, emails and inquiries. So I’m cheating a bit […]
Later today, Rachel and I are headed to Washington DC, arguably my favorite place. We are headed to the National Down Syndrome Society’s Buddy Walk on Washington. We are honored to be a part of all aspects of the program […]
I went to the Hill last week. For my Rose Bud friends, that is not Joy Mountain but Capitol Hill. If you have followed my blog or know me at all, you know that I am passionate about advocating for […]
Positive public awareness and advocacy are intertwined. It is an ongoing process and it’s not just about getting a bill to the house floor. It is about being alert to opportunities and understanding the need to promote 24/7. It can […]