Rachel Really Loves Her Life!

Back in October, US Dept. of Education Office of Special Education & Rehabilitation Services (OSERS) asked the National Down Syndrome Congress (NDSC) if they could assist in finding a self-advocate to submit a blog for their Down Syndrome Awareness Month focus. […]

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Merry Christmas! Jonathan & Jawanda: A Modern Day Comedy/Tragedy Chapter 29

Merry Christmas, Happy Holidays and Happiest New Year! Last year, we took a sabbatical from our annual Christmas letter so we could focus on getting Rachel graduated and starting the transition into the world of adulting for her. As usual, […]

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28 Day Countdown to College: How are you Mom/Dad?

Four weeks from today Rachel’s college classes as part of the Missouri State University Bear POWER Program begin.  Excitement and lists are plentiful around our house!  While the key question for a very long time may have been “What will […]

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Five of My Favorite Things: Giving and Supporting During the Holidays

The holiday season inspires a spirit of generosity and giving, and if you still itemize deductions on your taxes, a rush to get some year-end deductions by donating to worthy charities.  I read and hear that many people are flabbergasted […]

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Countdown to College!

Today is the last day of Down Syndrome Awareness/Acceptance Month. Yesterday, we registered Rachel for classes at Missouri State University in Springfield, Missouri.  Seventy-five days from today Rachel starts her classes at Missouri State University in Springfield. She will be […]

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Down Syndrome Acceptance: Real Friends

I have blogged about the ups and downs and hurts and joys of all friendships. This is Down Syndrome Awareness/Acceptance Month, but I haven’t written too many original blogs. Today, I want to provide encouragement in the form of a […]

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“Afflicted” with Down Syndrome

It has been almost 20 years since we entered the world of Down syndrome.  In that 20 years, I have a complied quite a list of phrases, comments, assumptions that I find ridiculous, ignorant, stupid (sorry but sometimes it just […]

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Guest Blog: Rachel’s ABLE to Save Message

It’s National #ABLEtoSave month!  Rachel joined Matt Syverson, Financial Planner and Dad to a daughter with Down syndrome,  Tom Treacy, Kansas State Treasurer’s Office, and me in sharing about ABLE accounts at the Down Syndrome Guild of Greater Kansas City […]

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Rockin Rachel Wins a Scholarship

Two weeks ago I wrote about Rachel receiving her college acceptance letter inviting her to be a Missouri State Bear Power student. Her college adventure begins January 2019. That video has had almost 70,000 views! It was a big week […]

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What Will Rachel Do Next Year? Hogs & Hawks & Bears, Oh My!

For way over a year, the big question has been “What will Rachel do?” Of course this is a common question for incoming high school seniors, but the answer and discussion is far more complicated when you have an intellectual […]

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