Like many of you I remember exactly what I was doing when I heard that the World Trade Center had been hit by planes. I was not at home and everyone around me was chattering about it but no one […]
Awe Struck/Never Forget 9-11
Tag: NDSS
Speaking of Congressional Champions
Rachel and I had the honor and privilege of joining our Senator Jerry Moran (R-KS) for a lunch meeting today. We love Senator Moran for so many reasons. One of his district office staffers, Michele, coordinated today’s logistics and met […]
From a Galaxy Far, Far Away to Advocacy
In case you haven’t heard, I’ve got a new gig. Beginning August 17, I will be the new Manager of Grassroots Advocacy for the National Down Syndrome Society. I follow in the footsteps of the very capable Ginny Sessions Siller. […]
Family Movies & Down Syndrome
In my circles we talk a lot about the need for family friendly, wholesome entertainment. That’s not just my church circle either. In my Down syndrome circles, we talk about wanting to see more positive images of individuals with Down […]
Ordinary and Whimsical
Last week was the National Down Syndrome Society’s (NDSS) Buddy Walk on Washington: the time we set aside to go an tell our stories on Capitol Hill. We also celebrate and give awards. This year I had the tremendous honor […]
Seven Days of Rachel’s Wild Life & Mom Too!
I’ll write more in-depth next week but on this Friday, I wanted to share some images from our past seven days and an unexpected piece of encouragement that an exhausted momma received when she returned home. I spoke at our […]
Why Advocate? We All Have a Story
Later today, Rachel and I are headed to Washington DC, arguably my favorite place. We are headed to the National Down Syndrome Society’s Buddy Walk on Washington. We are honored to be a part of all aspects of the program […]
Rachel’s Pink House in a Year?
Apparently, Rachel is moving into her pink house sooner than later. She was irritated with me last week. Yes, this would be my sweet child with Down syndrome who is always happy. During one of her self-talk bathroom sessions I […]
Celebrating the Rachel’s #WDSD15
This Saturday, March 21 the world will celebrate Rachel and all the other earthlings who have an extra 21st chromosome. World Down Syndrome Day (WDSD) is a day recognized by the UN, countries and organizations around the world where we […]
Miss Rachel Testifies
Inquiring minds wanted to know what we would do since the ABLE Act was now law. Well, we will work to get the state ABLE Act passed! Today we headed to the Kansas State Capitol and testified in support of […]